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Showing content with the highest reputation on 03/30/2020 in all areas

  1. Emily, that is amazing! Definitely track them down when you can! There is another song called malfunction, which deals with that nagging inner voice that we have probably all had that tells us that we are wrong or broken in some way. 💜 Plus I love the whole steampunk look lol.
    1 point
  2. I'm watching Family Guy on Hulu right now. In the episode the guys are texting. Joe texts a video of a guy in a wheelchair going up a ramp real fast, doing a backflip, and landing it. I looked at my chair, which is a powerchair, and thought, "There's no way this could do it. This thing's too heavy. Then I realized what the situation I'm in is. I'm in a wheelchair because I can't walk. I'm 38 years old and have been in a wheelchair for 2 years now. I'm 38 and in a wheelchair. I have Myotonic Muscular Dystrophy type 1. Within 3-4 years I won't be able to walk at all in any capacity. My body is deteriorating. Not just my body, but my cognitive faculties as well. I didn't get in a car accident and break both my legs. This isn't temporary. I'll never get out of this chair. Some people may think that it's nice that I have something to carry me around. I would trade them this chair for the ability to walk in a heartbeat. 3 steps and I pass out. Too much exertion. I never saw my life coming to this end. I never in a million years would have seen myself being confined to a wheelchair by the time I was in my mid 30's. MMD type 1 is a terminal disease. It has taken years off my life. Obviously I don't know how many. I've discussed it with Adrianne. If it comes earlier than expected, she will come here and make a post to let everyone know. I hate this life that I'm forced to live. I can't take care of myself fully. I have to have help. Adrianne went on a cruise with her parents a few years ago, and she had some family of ours (friends that are now family) come over every day to check on me. I was in my 30's and had to have a babysitter. I'm a full grown adult, and had a babysitter. You have no idea how humiliating that was. I felt like an invalid. Like I was being told that I could never last if I didn't have someone here. My egg donor was back in here reminding me how worthless and useless I am. I heard that all day every day. My sperm donor was back beating me. I was defeated. I still am. I'm not a person. Even the federal government says so. I'm a nonperson. I just got the news before most people. I just want a little dignity. But that's not going to happen.
    0 points
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